• 0 Posts
  • 11 Comments
Joined 1 year ago
cake
Cake day: June 10th, 2023

help-circle



  • I guess so. Honestly, though, if you have a rare condition and don’t want people suggesting things that you can’t do, it helps to be clear in your communication.

    If you go to a restaurant and tell the server “I can’t cook and I’m smell sensitive”, they’re going to say “Ok, you’ve come to the right place”. Instead, tell them “Unfortunately, if I catch a whiff of food I’ll feel sick.” Then the restaurant can see if there’s anything they can do for you.

    I just think most people, if they weren’t already aware of his Mayo Clinic saga and his rare condition, wouldn’t guess “oh this guy must have that thing where smelling food makes him feel sick” based on what he wrote. Something that rare and, let’s be honest, strange, needs to be stated clearly if he really wants people to know about it.

    I mentioned the fact that he paid $8+ for someone to deliver food, and his response rubbed me as overly defensive – “Some people just don’t bother reading the original list of 5 items, comprehending each one before commenting on my precious post.”